About my

Trisomy-X-syndrome

(also called as: Triple-X-syndrome)

  • In May 2010, when I was 39 years old, the 'Trisomy-X-syndrome' was found accidentally

 

  • The Trisomy X syndrome means: having 3 X-chromosomes in stead of the "normal" 2 X-chromosomes, as a woman

 

  • I have learned to cope with some of the symptoms, and am still learning, every day, both about myself and about the Trisomy X syndrome

 

  • Trisomy-X-syndrome causes both physical and mental complaints

 

 

  • Trisomy X-syndrome is still not that well known, so I often don't know what (mental or physical) complaint belongs to the syndrome or to something else

 

Mental complaints

  • I am hypersensitive to stress, I experience an event intensely and often need a lot of time to process an experience
  • I am often insecure or anxious (from no apparent reason) and can suddenly lose track
  • I often feel the tendency to hyperventilate

Physical complaints

  • I am hypersensitive / allergic to several things, for example: dust, perfume, chemical additives, nuts, trees, grasses, latex, chromium, nickel and histamine
  • As a child, I already had bad teeth, and still I have to take very good care of my teeth

  • From the age of 13 until 45, I suffered a lot from my menstrual period (with stomach pain, cramps and a lot of blood loss) and nowadays from hormonal complaints (including headaches)
  • I often suffer from pain and stiffness in my joints, all over my body